MUSC Childrens Hospital

Articles Tagged with: MUSC Childrens Hospital

Help-Portrait Charleston SC 2013

That picture says it all. Little Dereon was the first to come visit us in the atrium at MUSC Children’s Hospital on Friday for our annual Help-Portrait event that we organize there every December. She was also the last to get her photo taken! It took her a while to warm up to me, and she wanted to watch the other children with a curious eye to see what the deal was. The whole morning she was wearing a mask that covered her beautiful smile, and when she finally built up the courage to get her picture taken, she took off that mask and instantly transformed into an excited and confident little girl. I couldn’t think of a better story to explain what our Help-Portrait event at the children’s hospital means – It’s a way to make these kids and their families feel normal.

The holidays are an emotional time, and to add the struggle that these kids are going through is not easy to say the least. To give them any experience that lets them feel like regular kids is important in keeping them hopeful and strong. We’re just but one event of the hundreds of different kinds that are held every year for the hospital, but to see the happiness in Danielle’s face and the gratitude from her mom, you can see why we get so excited for this event every year:

How about little Kloeiann, who came out like a rock star? We had her and her mom design a sign for her to hold up for one of her pictures, and very awesome is quite appropriate for her 🙂

We also had a frame crafting station set up for the kids to design their own picture frame to put one of their photos in.

Thanks to Amy, Crystal, & Christina who volunteered to make this happen with me again this year. Also, thanks to the staff at MUSC Children’s hospital for letting us do this every year!

The photos are up on my gallery here, and there’s also a set on Flickr.

Help-Portrait MUSC Kids 2012

Photo by William Long

On Friday morning, I was joined by 5 great volunteers to gift portraits to the families of children at MUSC Children’s Hospital in Charleston, SC. This was the 3rd Help-Portrait event I’ve led at the children’s hospital and every year it gets better.

Top Row: William Long, John Lindroth, Joseph Nienstedt
Bottom Row: Katee Cornette, Jen Pfeffer, Kathy Hare

Due to the nature of the event we hold and HIPA, I don’t ask the subjects too much about the nature of their conditions. Instead, my philosophy is a little different than most other Help-Portrait events. My goal for the team is to make these kids and their families feel normal. We treat them as if they were coming into a studio and walk them through the whole process. We also provide them with craft photo frames that they design for their portraits, which is always fun for the kids.

Photo by William Long

One of the children asked to see my camera, so I showed him how it works. Then he wanted to take pictures of our next subject, so we let him – and the portraits turned out perfect! In fact, we printed those out and gave them to the subject, and they loved them. This is exactly what we wanted to provide for these families – a fun event that made them forget why they were in a hospital.

Photo by Kathy Hare

Here’s one of the portraits that Tyreq made:

Photo by Tyreq

There are a lot of meaningful things that the families and hospital staff say, but one that sticks out was a parent who’s child was too sick to leave the room but really wanted to participate. Because it was the parent requesting it, we were able to send a photographer into the room and take their family’s portraits – something they haven’t been able to do because of their situation. The photograph meant so much to the parent that she figured out a way to make it happen. This was such an example of the power of a photograph and what it means to someone in need.

Photo by William Long

Please take a moment and watch this slideshow of images from the event. I hope the images move you even slightly as much as they moved us:

Keeping Up With Morgan

One of the joys in participating in our Help-Portrait MUSC Kids group is learning about some of your subjects afterwards. Morgan Porter was the first girl we shot during our most recent event, and she’s been making the news due to her recent heart transplant. The courage and strength of Morgan & her family is unlike anything I could ever imagine. Please take 5 minutes to watch this video below.

You can also read and watch more about Morgan here.

I know I gush about the doctors and staff at MUSC Children’s hospital, but this is no miracle – it’s raw skill and talent that can pull this kind of operation off. The miracle to me is the will of such a small girl to fight against all of the odds.

Keep fighting Morgan, we’re all rooting for your success!

Miracles at MUSC

Aurora Kuck 1/8/2012

When you see a baby that’s just under 2 lbs and is alive, animated, & looking up at you with big beautiful eyes, you can’t help but be amazed at the wonders of life. The folks at MUSC Children’s Hospital are miracle workers for being able to do things like this every single day.

It was only a couple of weeks ago that I was talking to Aurora’s mother Crystal about shooting maternity pictures. She was worried that it was too soon and she wasn’t really showing much. Life happens in it’s funny ways and Aurora decided it was time to come out (way ahead of schedule). Lo and behold, I ended up shooting baby pictures!

Walking through the NICU is kind of intimidating – it’s looks like a scene from the X-FIles with all of these blue glowing pods and walls lined with medical equipment and monitors. I was expecting to see some alien being floating in a tube of liquid, but instead I saw little miracles of medical science as babies were being cared for with the greatest of expertise and love.

Crystal wanted to make sure we got a picture of Sarah, who’s one of many Sarah’s that have been attending to little Aurora. The new mom said that Sarah was her favorite nurse, but she never said which Sarah…

Welcome to the world little girl, you’ve got two loving parents and a big family just waiting to spoil you. What more could you ask for?

Help-Portrait MUSC Kids 2011

Every once in a while you take a photo that reminds you of why you love photography. Help-Portrait is an event where every time you press the shutter you make that picture.

On Friday, our small group of volunteers headed back to the atrium at the MUSC Children’s hospital in downtown Charleston, SC to give portraits to families of children who are being cared for there.

This year, the organizers of Help-Portrait have reversed their stance on sharing the photos of the subjects and have in fact encouraged us to do so. I’d like to share the photos I took of our 13 subjects during the event.

It’s amazing to be able to give the families of these kids something in a situation where so much has been taken from them. There is something about a kid smiling with you despite the struggle they’re fighting that makes you value the life we have.

Amy was in charge of gathering hats for our wardrobe since hair & make-up really wouldn’t work in this situation. For all the hats that we brought, the girls mostly liked the feather boa!

As I’ve mentioned before, the inspiration for us to bring Help-Portrait to MUSC Children’s Hospital came from leukemia survivor Jesse Dasinger. Last year, he was unable to participate due to his health. This year, he’s doing amazingly well and was able to drop in with his family to get his picture made:

I did have on technical problem that arose from a bad cable, and I had to retake Christopher’s photo here because the first attempt failed. He was a trooper, and was able to re-create the magic:

One of the brightest moments for me was when this girl, Amouri, came to get her photo made. She was also the last subject I shot. I grilled her a bit at first and found out she was a cheerleader. I knew she would be a great subject. She said something that made me feel tremendously enlightened about what goes on at MUSC. I asked her how she was feeling, and she said “I feel amazing”.

Another change introduced in this year’s Help-Portrait was the involvement of the participants. We came up with the idea to bring plain wooden picture frames to let the kids decorate them with – they loved it! John Lindroth took this shot of Megan:

Here’s the team photo shot by one of the staffers at the hospital:

Help-Portrait Charleston SC MUSC Kids Team

Drew, John, & Eugene also have some photos of the event that I’ll share soon. All of the photos will be available here. I also participated in the Charleston Help-Portrait group at the James Island Convoy of Hope event yesterday. I’ll be sure to write up another recap of that event soon! Stay tuned…

Help Portrait MUSC Kids 2011

It’s been almost a year since we held our Help-Portrait MUSC Kids events (last year we did 2 – you can read about those here and here). This year, I’ll be leading our team on Friday, December 9th at the MUSC Children’s Hospital. We can’t do weekends at the hospital, so this was the closest we could get to the actual event. The Charleston, SC Group is also planning to host 4 events simultaneously on the official day in North Charleston, Charleston, James Island, & Johns Island. So if you can’t help us out on Friday, I’m sure they could use it on Saturday.

This year the Help-Portrait organizers want everybody to be a bit more interactive with their subjects. To best understand what they mean, Jeremy Cowart tells us in this video:

I think we can do some exciting stuff with these children since we don’t have a large amount of kids that we shoot. We can really spend some time getting to know their stories and spreading the word about Help-Portrait. Some ideas I have are to do some video, which would mean that a videographer could help us out this year. Since we can’t really do hair and makeup, maybe we could incorporate some really awesome hats as props – if anyone can pull together a unique hat collection, that would be cool (maybe we could ask a local thrift store to lend some to us). How about some frames that the kids can paint? I’ll be bringing a 5×7 photo printer, so the kids can make their photos into an art project (the atrium has painting supplies). If you have any ideas, I’d really appreciate them (either here in the comments, on the Help-Portrait Community site, or on Facebook).

I also wanted to share with you some great news from the boy who was our inspiration to do this at MUSC Children’s Hospital. Jessie Dasinger has passed the 280+ day mark after his bone marrow transplant and he’s doing great. He’s back in school and back to being a normal kid again. His story is an inspiration considering that just a year ago at this time he wasn’t well enough to participate in the event.

Make sure to check our community page for all planning info regarding the event. It’s less than a month away, so please don’t be shy – lets get the conversation started!

Angel Walk 2011

On Saturday, May 21st the 2nd Annual Angel Walk took place over in Hampton Park in Charleston, SC. Questioning the predicted rapture for that day, I felt the best way to find out firsthand was to walk with Angels… OK, bad jokes aside, the Angel Walk is actually a fundraising and awareness event to fight medulloblastoma, which is the most common malignant central nervous system tumor in children.

I found out about Dawn Sechevich (pictured above on the left) and her son’s story through my neighbors who are close friends with her. Her boy, Luke James Sechevich, was diagnosed with high risk medulloblastoma on January 30, 2006 at the age of 1-½. After a long battle, Luke passed away in January of 2008. Dawn organized the Angel walk for Luke and all children who battle this disease in the hopes that they will someday find a cure. Read the full story on the Angel Walk website. Here’s a clip of her story from Lowcountry Live:

Let’s talk about the event, which was an uplifting and fun-filled family day in the park. There were a lot of activities for the kids, great food, and performances throughout the morning. Face painting, hair spraying, caricatures, the King of Pops, and jumping cows!

The Djole Dance & Drum Company livened up the event with African beats and dancing:

The Charleston Police Pipes & Drums band stormed the event with a fantastic set of traditional bagpipe music…

Melinda Gay & Dawn Sechevich pose for a shot with the band:

One of the highlights of the event for me was the singing of the gospel choir that closed out the day. There really is nothing quite like a southern gospel group to make you feel like you can believe in anything.

There were a lot of other people involved in making this event happen, especially the doctors and staff from MUSC Children’s Hospital as well as all of the sponsors who donated money and vendors who donated their services and products. Make sure to browse through the Angel Walk website and throw some support to all of the sponsors on there.

While I do have a big old set of photos on Flickr, I have an even bigger, more thorough set of pictures in my gallery with the ability to download for all of those who participated!

Don’t forget, you can always donate some money at any time through this charity, so please help them out, and tell all of your friends to “Like” them on Facebook as well!